Candid with Stripes
One month ago after we had done a lot of research on a service dog for Mason, and what that could look like for him, checked into all different types of services, companies and non profits. Talked about if we could ever afford to do this for our son and how we could. We were … Continue reading We have news! →
Its early in the morning, I’m sitting and enjoying my coffee in a very quiet house while everyone is still asleep. It’s given me time to really reflect on the last few weeks. I’m crying tears of pure joy. It could be the fact that I have actual quiet time, with hot coffee that has … Continue reading Being the people deserving of these gifts.. →
Tonight my youngest came running to my husband Bryan to read him the “book that has daddy on the back of it”! Shel Silverstein with his bald head and beard on the back of the book resembles my husband. He also has a bald head and beard lol. As long as I can remember ” … Continue reading The Giving Tree.. →
If you want to find a quick reference for all the ways we have set up that you can help Mason get his service dog, I’m going to list them all here. Feel free to share this post directly. We will be updating this page frequently as more information comes to us! All of the … Continue reading Information on how to help.. →
**Trigger warning for this post, there is talk of miscarriage. In June 2016 Sydney was not quite two years old yet, and Mason had just turned 4. Sydney had chronic ear infections, and she would not sleep. She had night terrors, and she would be awake all night long. It was brutal. She finally had … Continue reading A year we try to forget.. →
When Mason was a baby I used to sing him a song, and the lyrics had “Oh theres nothing that I wouldn’t do, go to the ends of the earth for you to make you feel my love..” I just never knew how true those lyrics would be for us. Getting Mason a diagnosis, researching … Continue reading Go to the ends of the earth for you.. →
We have debated back and forth for what seems like months now on the possibility of getting Mason a service dog. The financial aspect of it was what really made it seem like it was totally impossible to do this for our son. We knew we needed to help him somehow, but what we were … Continue reading Mason gets a service dog… →
If a year ago you would have told us we would be where we are right now, I wouldn’t have believed you. Even six months ago, I would’ve questioned it. Six months ago, Mason woke up everyday able to get around. He had pain, and some days where you could tell he hurt a lot. … Continue reading A little help.. →
This post is different today. It’s not about EDS. It’s deep in my feelings, ones that people don’t talk about often. Do you ever feel forgettable? You’re a great person, accepting, loving, a decent friend. However, you aren’t quite enough for people to remember you. You watch all the friends you thought you have, get … Continue reading Forgettable.. →
Maybe you came to my blog today because your child, or yourself was just recently diagnosed. Maybe you suspect it, and want more information. Maybe you’re not new to Ehlers Danlos, but you’re heart is feeling it right now. You’re at a new crossroad with it, and you don’t know where to turn, what to … Continue reading It’s going to be ok.. →
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